This blog post will be an archive for various data points and expert opinions on drugs not commonly used or in clinical trials for DMGs. Parents consider these based on hypothesized effects or pre-clinical data. Image source: https://www.koschmannlab.org/precision-medicine Salinomycin People have published that Salinomycin targets cancer stem cells there are invitro studies on its use in GBM cells. Salinomycin (Sali) is an anticoccidial polyether antibiotic. 20240329 (pre cli

Updated: May 2025, "addition of a radiosensitizing methionine-restricted diet to radiation therapy." + Note or combination care. Nov 4, 2023 added a note on cystine and note on foods for feeding tubes. Oct. 14, 2023 added July 2023 paper Targeting Methionine Addiction of Cancer Cells with Methioninase Oct. 1st, 2023 paper: "Synergy between methionine stress and chemotherapy in the treatment of brain tumor" ; Some food pics Diet has been controversial in cancer treatments, K

May 17th, is the DIPG Awareness Day so we take a moment to reflect what our community of supporters have achieved. In the past...

Our 2022 Apero is a wrap, an amazingly successful event in one of the most historic venues in Zurich: "HAUS ZUM RÜDEN | Eine Hommage an...

Last update: April 2026 Notice: I am not a doctor and this is not at all a medical or other advice, just a summary of my personal understanding of the topic. Cannabis remains highly controversial in some jurisdictions, but there has been huge advances forward across the globe with legalizations, medical usage and actual prescription drugs being approved. Regardless the number of official pre-clinical work remain scarce and despite the positive outcomes clinical trials are ver

Sharing my thoughts and data collection on Ultrasound for DIPG, as always a disclaimer that I am not a medical doctor and this is not...

Updated: Sept 30, 2023 added video DIPG / DMG Info Webinar from PNOC I am not an expert and thus will share the best summary from...

Updated: April, 2025: Added some updates on new and closed trials Hello, we are just starting and I will be posting all of our findings and thoughts and expand into deep-dive posts for each. But here is the main areas and treatment options/ideas outside of the radiation (standard of care). Some of them are already showing a glimmer of hope and statically outliers/ patients. No single therapy has demonstrated curative potential for DIPG/DMG to date :(. The field is moving t