This blog post will be an archive for various data points and expert opinions on drugs not commonly used or in clinical trials for DMGs....

Updated: Dec 2023, "addition of a radiosensitizing methionine-restricted diet to radiation therapy." Nov 4, 2023 added a note on cystine...

May 17th, is the DIPG Awareness Day so we take a moment to reflect what our community of supporters have achieved. In the past...

Our 2022 Apero is a wrap, an amazingly successful event in one of the most historic venues in Zurich: "HAUS ZUM RÜDEN | Eine Hommage an...

Notice: I am not a doctor and this is not at all a medical or other advice, just a summary of my personal understanding of the topic....

Sharing my thoughts and data collection on Ultrasound for DIPG, as always a disclaimer that I am not a medical doctor and this is not...

Updated: Sept 30, 2023 added video DIPG / DMG Info Webinar from PNOC I am not an expert and thus will share the best summary from...

Updated: June 14h, 2025: Added some updates on new and closed trials Hello, we are just starting and I will be posting all of our...